A week ago, medical marijuana finally went on sale at some dispensaries here in Connecticut. As a brain cancer survivor and an outspoken advocate for the legalization of medical marijuana, I’ve been flooded with calls from reporters for quotes, sound bites and comments.

Ever since a reporter called my house while I was napping on Friday, I have thought long and hard about Connecticut’s medical marijuana program, because my immediate reaction after answering the phone was to break into tears.

He told me that the price for marijuana in the dispensaries ranges from $450 to $600 an ounce, substantially more than the street price. This could defeat all our efforts to have patients register to get marijuana legally and then fine-tune dispensing programs to give people just the type and dose of the medicine that they need. I’d hoped to make Connecticut’s the best, medically viable, safest and smartest program in the country. I closed my eyes and said, “Goddamn it!” And started to tear up. I know the reporter felt awful.

I started to cry because I fought so hard, stood up at so many hearings, went public with my story and became a strong medical marijuana advocate all while living with brain cancer and using this medication to … well … live an amazing life.

So, instead of complaining about how sad I am about the program that has emerged in Connecticut, I’m going to be part of the solution. I played a big part in creating this law. I will continue to be a part of the discussion when it comes to improving the unfinished medical marijuana program so that those dispensing and using it will know the science behind its use.

I want the media to cover the whole story. Not just the sad brain cancer patient who’s disappointed, …read more